{"id":17768,"date":"2023-02-09T07:47:40","date_gmt":"2024-02-25T22:04:54","guid":{"rendered":"https:\/\/002.chilluh.nl\/fda-rare-disease-day-2024\/"},"modified":"2023-02-09T07:47:40","modified_gmt":"2024-02-25T22:04:54","slug":"fda-rare-disease-day-2024","status":"publish","type":"post","link":"https:\/\/werelivingwell.com\/wchwtz-fda-rare-disease-day-2024-yctgcyhrf-photos\/","title":{"rendered":"Fda Rare Disease Day 2024"},"content":{"rendered":"<div class=\"cd5c096581fd5fc23b44a4969c1e3c2e\" data-index=\"1\" style=\"float: none; margin:10px 0 10px 0; text-align:center;\">\n<div style='text-align: center;'>\r\n<script type=\"text\/javascript\">\r\n\tatOptions = {\r\n\t\t'key' : '0a1f35073c594f712b44ac459670782f',\r\n\t\t'format' : 'iframe',\r\n\t\t'height' : 250,\r\n\t\t'width' : 300,\r\n\t\t'params' : {}\r\n\t};\r\n\t\r\n<\/script>\r\n<\/div>\r\n\n<\/div>\n<p>\t\t\t\t<![CDATA[\n\n<p><b>Fda Rare Disease Day 2024<\/b> &#8211; AN OPENING TO RAISE IRA WORRIES \u2014 Hundreds of rare disease advocates will descend on Washington next week to lobby Congress and the executive branch to speed potentially life-changing therapies to  . To mark upcoming Rare Disease Day, pharmaphorum asked a panel of experts to give their  How significant was the first FDA approval of a CRISPR gene therapy in late 2023, and what other promising  .<\/p>\n\n\n\n\n<h2>Fda Rare Disease Day 2024<\/h2>\n\n\n\n\n<p align=\"center\"> <a title=\"Public meeting: FDA Rare Disease Day 2024   03\/01\/2024 | FDA\"><img decoding=\"async\" src=\"https:\/\/www.fda.gov\/files\/styles\/main_image_medium\/public\/RDD%202024_Web%20Graphic_FINAL-01.png?itok=CknGkTOI\" width=\"100%\" height=\"100%\"><\/a> <\/p>\n\n\nSource : <a href=\"https:\/\/www.fda.gov\">www.fda.gov<\/a>\n\n\n<h2>Public meeting: FDA Rare Disease Day 2024   National Organization <\/h2>\n\n\n\n\n<p align=\"center\"><a title=\"Public meeting: FDA Rare Disease Day 2024   National Organization \"><img decoding=\"async\" src=\"https:\/\/rarediseases.org\/wp-content\/uploads\/2023\/12\/RDD-2024_Web-Graphic_FINAL-01.png\" width=\"100%\" height=\"100%\"><\/a> <\/p>\n\n\nSource : <a href=\"https:\/\/rarediseases.org\" rel=\"nofollow\">rarediseases.org<\/a>\n\n\n<h2>Public meeting: FDA Rare Disease Day 2024   03\/01\/2024 | FDA<\/h2>\n\n\n\n\n<p align=\"center\"><a title=\"Public meeting: FDA Rare Disease Day 2024   03\/01\/2024 | FDA\"><img decoding=\"async\" src=\"https:\/\/www.fda.gov\/files\/RDD%202024_Web%20Graphic_FINAL-01.png\" width=\"100%\" height=\"100%\"><\/a> <\/p>\n\n\nSource : <a href=\"https:\/\/www.fda.gov\" rel=\"nofollow\">www.fda.gov<\/a>\n\n\n<h2>Register today for FDA&#8217;s Rare Disease Day 2024   YouTube<\/h2>\n\n\n\n\n<p align=\"center\"> <a title=\"Register today for FDA's Rare Disease Day 2024   YouTube\"><img decoding=\"async\" src=\"https:\/\/i.ytimg.com\/vi\/RqFcuhxkzW0\/sddefault.jpg\" width=\"100%\" height=\"100%\"><\/a> <\/p>\n\n\nSource : <a href=\"https:\/\/www.youtube.com\" rel=\"nofollow\">www.youtube.com<\/a>\n\n\n<h2>Rare Disease Day<\/h2>\n\n\n\n\n<p align=\"center\"> <a title=\"Rare Disease Day\"><img decoding=\"async\" src=\"https:\/\/lookaside.fbsbx.com\/lookaside\/crawler\/media\/?media_id=760888026082824\" width=\"100%\" height=\"100%\"><\/a> <\/p>\n\n\nSource : <a href=\"https:\/\/www.facebook.com\" rel=\"nofollow\">www.facebook.com<\/a>\n\n\n<h2>Register today for FDA&#8217;s Rare Disease Day 2024   YouTube<\/h2>\n\n\n\n\n<p align=\"center\"> <a title=\"Register today for FDA's Rare Disease Day 2024   YouTube\"><img decoding=\"async\" src=\"https:\/\/i.ytimg.com\/vi\/RqFcuhxkzW0\/hqdefault.jpg\" width=\"100%\" height=\"100%\"><\/a> <\/p>\n\n\nSource : <a href=\"https:\/\/www.youtube.com\" rel=\"nofollow\">www.youtube.com<\/a>\n\n\n<h2>FDA Oncology on X: &#8220;FDA Oncology&#8217;s Dr. Martha Donoghue will be <\/h2>\n\n\n\n\n<p align=\"center\"> <a><img decoding=\"async\" src=\"https:\/\/pbs.twimg.com\/card_img\/1760012260527763456\/_1p9vFxv?format=jpg&amp;name=medium\" width=\"100%\" height=\"100%\"><\/a> <\/p>\n\n\nSource : <a href=\"https:\/\/twitter.com\" rel=\"nofollow\">twitter.com<\/a>\n\n\n<h2>Register today for FDA&#8217;s Rare Disease Day 2024   YouTube<\/h2>\n\n\n\n\n<p align=\"center\"> <a title=\"Register today for FDA's Rare Disease Day 2024   YouTube\"><img decoding=\"async\" src=\"https:\/\/i.ytimg.com\/vi\/RqFcuhxkzW0\/mqdefault.jpg\" width=\"100%\" height=\"100%\"><\/a> <\/p>\n\n\nSource : <a href=\"https:\/\/www.youtube.com\" rel=\"nofollow\">www.youtube.com<\/a>\n\n\n<h2>Rare Disease Day   You loved the first! Here&#8217;s another <\/h2>\n\n\n\n\n<p align=\"center\"> <a title=\"Rare Disease Day   You loved the first! Here's another \"><img decoding=\"async\" src=\"https:\/\/lookaside.fbsbx.com\/lookaside\/crawler\/media\/?media_id=791632683008358\" width=\"100%\" height=\"100%\"><\/a> <\/p>\n\n\nSource : <a href=\"https:\/\/www.facebook.com\" rel=\"nofollow\">www.facebook.com<\/a>\n\n\n<h2>Glenn Noronha on LinkedIn: Public meeting: FDA Rare Disease Day 2024<\/h2>\n\n\n\n\n<p align=\"center\"> <a title=\"Glenn Noronha on LinkedIn: Public meeting: FDA Rare Disease Day 2024\"><img decoding=\"async\" src=\"https:\/\/media.licdn.com\/dms\/image\/sync\/D4E27AQEBxFrbsaQWHw\/articleshare-shrink_800\/0\/1705676337719?e=2147483647&amp;v=beta&amp;t=1njkf2jT9mHxKwKba4n3QNG-oD-zNqn9G81fG7WLLvA\" width=\"100%\" height=\"100%\"><\/a> <\/p>\n\n\nSource : <a href=\"https:\/\/www.linkedin.com\" rel=\"nofollow\">www.linkedin.com<\/a>\n\n\n<p><b>Fda Rare Disease Day 2024 Public meeting: FDA Rare Disease Day 2024   03\/01\/2024 | FDA<\/b>:   On Rare Disease Day, we spoke to chief executive of the Genetic  which is why working with patients from the very start of drug development is vital, she added. \u201cThe diversity and  . In 2023, more than 50% (28 of 55) of the novel drugs reviewed by the US Food and Drug Administration (FDA) received orphan drug designation for the prevention, diagnosis, or treatment of a rare  . <\/p>\n\n\n]]>\t\t<\/p>\n\n<div style=\"font-size: 0px; height: 0px; line-height: 0px; margin: 0; padding: 0; clear: both;\"><\/div>","protected":false},"excerpt":{"rendered":"<p>\t\t\t\t<![CDATA[]]>\t\t<\/p>\n","protected":false},"author":1,"featured_media":0,"comment_status":"open","ping_status":"open","sticky":false,"template":"","format":"standard","meta":{"footnotes":""},"categories":[57],"tags":[],"aioseo_notices":[],"_links":{"self":[{"href":"https:\/\/werelivingwell.com\/wp-json\/wp\/v2\/posts\/17768"}],"collection":[{"href":"https:\/\/werelivingwell.com\/wp-json\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/werelivingwell.com\/wp-json\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/werelivingwell.com\/wp-json\/wp\/v2\/users\/1"}],"replies":[{"embeddable":true,"href":"https:\/\/werelivingwell.com\/wp-json\/wp\/v2\/comments?post=17768"}],"version-history":[{"count":0,"href":"https:\/\/werelivingwell.com\/wp-json\/wp\/v2\/posts\/17768\/revisions"}],"wp:attachment":[{"href":"https:\/\/werelivingwell.com\/wp-json\/wp\/v2\/media?parent=17768"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/werelivingwell.com\/wp-json\/wp\/v2\/categories?post=17768"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/werelivingwell.com\/wp-json\/wp\/v2\/tags?post=17768"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}